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Hope for SCA1 | SCA1 Awareness & Support Nonprofit

Hope for SCA1 is a nonprofit dedicated to raising awareness, providing support, and advancing understanding of Spinocerebellar Ataxia Type 1 (SCA1).

Inspiring Stories, Hope, and Support.

Raising Awareness for SCA1

I’m Sydney Blake, a high school student dedicated to spreading awareness about SCA1, a neurodegenerative disease affecting my family. Join us in sharing stories and supporting vital research.

Our Mission Matters
Together We Can

This platform features personal stories from those impacted by SCA1, along with opportunities to donate and support ongoing research efforts. If you or your friends/family are affected by SCA1, please share your story in the contact information at the bottom of the website.

Ronald Anderson

As I mentioned earlier, Spinocerebellar Ataxia Type 1 (SCA1) has affected many members of my family, including my grandfather. He passed away on August 27, 2025, at the age of 77 while in the care of Hospice of Northwest Ohio. His obituary, linked below, provides further insight into his life, character, and the legacy he left behind.

.https://www.legacy.com/us/obituaries/toledoblade/name/ronald-anderson-obituary?id=59318809

Contact Us

We would love to hear from you! Reach out for support, share your story, or inquire about donations for SCA1 research.

If you would like to attach a picture with your story/message, send it to the email down below.

Connect

773-720-4388

sblake@hopeforsca1.org

Awareness

Join us in supporting SCA1 research and stories.

Hope for SCA1, inc. is an Illinois nonprofit corporation dedicated to education and awareness.

EIN: 39-3443248

Support

contact: sblake@hopeforsca1.org

The following research initiatives are led independently by academic institutions. Hope for SCA1 is not affiliated with, does not receive funds from, and does not manage donations to these programs.

773-720-4388

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